Everybody seems to have an opinion once they know you have a disease, and what you should do to ‘fix’ it. I know this is done out of love, it is so hard to see our loved ones have an illness. But here, on my blog, in my tiny cyberspace of our big, crazy internet world, I won’t tell you what you need to do.
I won’t tell you to go gluten free, to eat only raw foods, go vegan, paleo, eat meat, or follow the latest fad diet.
I won’t tell you to have surgery, take meds, or follow a certain herbal regime. I won’t tell you what you have to do to overcome this, or any disease.
I won’t tell you to get over it.
I won’t blame you for being ill and tell you to get out of your victim consciousness.
I won’t tell you you’re lazy, crazy, or only seeking more pain meds like an addict.
I won’t tell you having children will heal this, or that not wanting children is causing the endo, when the gut wrenching truth is that so many of us endo sufferers want that more than anything, but cannot.
How many of us have heard these ideas one too many times?
There are many, many, MANY approaches to healing and managing this disease, and each of us is different. What works for one person may not work for the next, especially with endometriosis.
I will tell you what has worked for me. I will share with you my personal journey to find answers and meaning. I will tell you where I have been and where I am going in this life with dis-ease.
I have no room for judgements here. I have no tolerance for more of the blaming and shaming that so many of us with chronic diseases have become the target for.
This is real. This is my life and I am living it for me, in order to be of greater service to ‘us’. I’m not going to drop any quick fixes or short treatments and ’cures’ just to shluff off uncomfortable emotions and avoid looking deep into the abyss of what it’s like living with this chronic disease.
I feel your pain. I hear your questioning, frustrations and agony. Will it get better? Will the pain and suffering go away? I don’t know. But I do know it is crucial to never, ever stop believing. <3
All my Love,
Sara